James Conlon
Founder
I'm James, I'm 26 and from Birmingham. I was diagnosed with Ulcerative Colitis in 2012. I am a store manager in a retail store and I also founded 'The Toilet Me & IBD' in 2015 after searching through social media and search engines for support. I am also a media volunteer for Crohn's & Colitis UK I'm currently on a biologic drug called Humira (Adalimumab) and have been for 2 years. Aside from the illness I absolutely love just chilling out and watching reality tv, I live for a night out and you can usually find me somewhere with a double vodka and coke in my hand 😏
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Chloe Meade
Admin
I'm Chloe, I'm 23 from South Wales and I have Crohn's disease, I was diagnosed 13 years ago, I've had an emergency operation back in 2015 which I spent 9 weeks in hospital, I'm currently on ustekinumab injections every 8 weeks, my last surgery caused me to have an enterocutaneous fistula on my stomach, basically there is a hole in my sigmoid colon and it's contents are escaping through a small hole on my belly, I'm waiting for an operation in the upcoming months to have this fixed, I will be having the portion of my sigmoid colon which is affected cut out and given a colostomy on my left side, judging on how badly my bowel is on my right side where I was joined up in my last op I may end up with an illeostomy too. At the same time I will be having my gallbladder removed as I have gallstones and suffer attacks, part of my bowel is also stuck to one of my ovaries causing bad nerve pain in my right leg so I may need this removed too. Anyways apart from all the scary stuff, I'm a pretty happy girl, I get on with life! I love nothing more than a pornstar martini 😛
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Nick Russell
Admin
I have Ulcerative Colitis and was diagnosed in August 2009 and put onto prednisolone (steroids) mesalazine to try and help me but I was severely ill for 5 months not being able to work or go anywhere. Having only 8 weeks off steroids from the start of Jan 2010 I was then ill again and put onto Azathioprine (immuno-suppressants) along with the other two drugs. This cocktail worked for a time but just over a year on from being diagnosed I was still not well, always tired, fatigued and having horrible mood swings. I had the option of trying Infliximab which was another immuno supessant or surgery. My consultant and IBD nurse both agreed that the latter would be more beneficial as my colon was not going to get any better due to how severe my colitis was. So on December 5th 2010 I went into surgery to have an ileostomy and had most of my large colon removed. I had a small extented stay in hospital because I was so ill, nobody realised how bad I was until then. After 18 days in hospital I was out for Christmas with a few days to spare. All had been good upon till last summer when I had a colonoscopy and what remaind of my colon was still diseased and only getting worse so November last year I underwent my second lot of surgery to remove what was left as well as my rectum to make my ileostomy permenant and a year on I have no regrets about making one of the hardest decisions I will ever have to make. I was fortunate enough to be asked to feature in the Purple Wings Charity Calendar with some incredibly inspirational men. Aside from the illness I enjoy football, golf and formula one.
Annie
Admin
I'm Annie! I'm a 26 year old single mum currently living in Axminster,Devon and I currently suffer with Crohns disease, Fibromyalgia, Hypermobility syndrome and severe depression. For my Crohns disease I take azathioprine but that is the start of a long list of medications I take. I had a right hemicolectomy April 2014 which did put me in remission but gave me bile salt malabsorbtion. I now currently have colonic inertia so under a surgeon for many investigations before I have more surgery in the future. I am always happy to be someone to talk to, I'm awake most nights til early mornings and I always respond as soon as I can. Take care!